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ACROD

To work with and lobby on behalf of non government and voluntary agencies which provide services to people with disabilities and directly on behalf of people with disabilities

Postal Address: PO Box 1428, Osborne Park WA, 6916
Office Phone: 9242 5544
Fax: 9242 5044
Website:www.acrod.org.au [report broken link]
Email: acrodwa@acrod.org.au

Albinism Support Group of Western Australia Inc

To promote awareness of albinism in Western Australia. Organises activities for the enjoyment of members. Maintains communications with other albinism groups.

Postal Address: 3 St Andrews Way, Duncraig WA, 6023
Fax: 9361 8696
Email: marijac@abwa.asn.au
Contact Name: Marija / Sue

Alzheimers Australia WA Ltd

Represents and supports individuals with dementia and their carers and advances their interests at a personal, community and political level.

Postal Address: PO Box 1509, Subiaco WA, 6904
Office Phone: 9388 2800
Second Office Phone: Freecall 1800 639 331
Fax: 9388 2739
Website:www.alzheimers.asn.au [report broken link]
Email: alzwa@alzheimers.asn.au

Angelman Syndrome Association (WA Branch)

Provides support and information to affected families

Postal Address: 16 Kirkcolm Way, Warwick WA, 6024
Fax: 9343 4431
Website:www.angelsyndrome.org [report broken link]
Email: allaboutbread@bigpond.com
Contact Name: Liz

Arthritis Foundation of WA incorporating Osteoporosis WA

Provides care, education and research programmes for people with arthritis, osteoporosis etc including self management programmes, hydrotherapy exercise classes. Quarterly magazine. Support groups for the following conditions: Sjogrens Syndrome, Ankylosing Spondylitis, Sclerdoma, Juvenile Chronic Arthritis, Ross River Virus, Fibromyalgia, Osteoporosis, Arthritis Link (18-45 year olds,) Local Link

Postal Address: PO Box 34, Wembley WA,
Office Phone: 9388 2199
Second Office Phone: Freecall 1800 011 041
Fax: 9388 4488
Website:www.arthritiswa.org.au [report broken link]
Email: general@arthritiswa.org.au

Asthma Foundation of WA

The leading community agency providing quality asthma education and community service and financial support for research into a cure

Postal Address: PO Box 864, West Perth WA, 6872
Office Phone: 9481 1234
Second Office Phone: Freecall 1800 645 130
Fax: 9481 1292
Website:www.asthmawa.org.au [report broken link]
Email: ask@asthmawa.org.au

Australasian Tuberous Sclerosis Society

The aim is to provide information, contact and support between families and we hope to create more public awareness of this rare medical condition.

Postal Address: 76 Coode Street, South Perth WA, 6151
Website:www.atss.org.au [report broken link]
Email: suemika@iinet.net.au
Contact Name: President: Mrs Sue Williamson

Australian Crohns and Colitis Association

Provides educational material for people with inflammatory Bowel Disease, theuir families and carers. Fundraising for research. Various brochures available.

Postal Address: PO Box 201, Moorollbark Vic, 3138
Office Phone: Freecall 1800 138 029
Second Office Phone: (03) 9726 9008
Fax: (03) 9726 9914
Website:www.acca.net.au [report broken link]
Email: info@acca.net.au

Australian Kidney Foundation

Provides support services and information for renal patients and their families. Educates the community and funds research into kidney diseases

Postal Address: GPO Box 9993, Perth WA, 6001
Office Phone: 9322 1354
Fax: 9481 3707
Website:www.kidney.org.au [report broken link]
Email: akf@perth.kidney.org.au

Australian Klippel Feil Syndrome Support Group

To link with other sufferers and provide support to KFS families. The syndrome is a malformation of the spine characterised by fusion of some or all the cervical vertebrae.

Physical Address: 1 Jaywick Close, Safety Bay WA, 6169
Contact Name: Oliver/Gale

Australian Pituitary Foundation WA Branch

Provides support and encourages social interaction between people suffering from pituitary disorders through group support meetings, patient information seminars, social activities and networking between members. Counselling and support either via phone or in person available.

Postal Address: 20 Tate Street, West Leederville WA,
Contact Name: Kevin

Australian Thyroid Foundation

To educate and raise awareness in the community about thyroid disorders. Offers support to patients and families. Runs support groups and seminars. Lobbies the government for funding for research.

Postal Address: PO Box 186, Westmead NSW, 2145
Office Phone: (02) 9890 6962
Fax: (02) 9845 7287
Website:www.thyroidfoundation.com.au [report broken link]
Email: thyroid@icpmrwsahs.nsw.gov.au

Australian Wolf Hirschorn Syndrome Support Group

Provides support to parents of children with this rare chromosome disorder

Postal Address: C/O 25 Baker Road, Invergowrie, 2350
Office Phone: (03) 9305 5001
Email: bectamumbi@bigpond.com
Contact Name: Anne

Autism Association of Western Australia Inc

Advances the personal development, equality of opportunity and community participation of people with autism. Provides direct intervention, consultancy, professional development, employment services, group homes, respite, early intervention services, school age services. Respite group homes, accommodation support, Post School Options programs, and family support programs also available.

Postal Address: Locked Bag 9, West Perth, 6872
Physical Address: Street Address, Suburb, Postcode
Office Phone: 9489 8900
Second Office Phone: Office Phone (2)
Fax: 9489 8999
Website:www.autism.org.au [report broken link]
Email: autismwa@autism.org.au
Contact Name: Contact Name
Contact Mobile: Contact Mobile

Black Swan PKUs

PKU is an inherited metabolic disorder that occurs in one in 25000 births. The group provides information and support about dietary options and research developments to sufferers of this condition to help reduce the islolation felt by all.

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6489
Contact Name: Phil or Melanie

Breast Cancer Support Group - Collie

Provides a monthly social meeting for breast cancer sufferers on the second Monday of the month at 7pm

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Contact Name: Edith / May

Cancer Foundation of WA Inc

Aims to minimise the effect of cancer on our community through research and education, and by providing patient and family support to enhance the quality of life for people living with cancer.

Postal Address: 334 Rokeby Road, SUBIACO WA, 6008
Website:www.cancerwa.asn.au [report broken link]
Email: inquiries@cancerwa.asn.au

Cancer Wellness Centre

Provides emotional support, education, information and services to cancer patients their families and carers including, meditation, counselling, support groups and art therapy

Postal Address: PO Box 325, Cottesloe WA, 6011
Office Phone: (08) 9384 3544
Fax: (08) 9384 6196
Website:www.cancersupportwa.org.au [report broken link]
Email: csa@cancersupportwa.org.au

CANTEEN - The Australian Teenage Cancer Patients Society - WA

Supporting, developing and empowering young people living with cancer. Patients aged 12-24 with a cancer diagnosis, siblings of patients and offspring - young people 12-24 with a parent or primary carer with a cancer diagnosis.

Postal Address: AH Crawford Lodge 55 Monash Avenuee, Nedlands WA, 6009
Office Phone: (08) 6380 1884
Fax: (08) 6380 1885
Website:www.canteen.org.au [report broken link]
Email: wa.admin@canteen.org.au

Cerebral Palsy Association

The Cerebral Palsy Association of Western Australia provide a range of unique services for both children and adults with cerebral palsy - services which are not available in the general community. Programmes are integrated within the community where possible. Other details: therapy programmes assist children to develop the skills needed to participate in family, school and community life, and also to help their families manage. Services for adults with cerebral palsy focus on helping them to participate in community life, further education, employment or valued alternative day occupations.

Postal Address: PO 61 Box, Mt Lawley WA, 6929
Physical Address: 106 Bradford Street, Coolbinia WA, 6050
Office Phone: 9443 0211
Second Office Phone: Free Call: 1800 198 263
Fax: 9444 7299
Website:www.cpawa.com.au [report broken link]
Email: info@cpawa.com.au

Charcot-Marie Tooth Association of Australia (Inc)

To distribute information about CMT and provide contact with other CMT people, promote the development of facilities and services and support CMT research.

Postal Address: 16 Jagoe Loop, Willagee WA, 6156
Office Phone: Diane 9337 5063
Second Office Phone: Sydney office (02) 9767 6105
Website:www.e-bility.com/cmtaa [report broken link]

Childlimbs

Supports families with children who have congenital or acquired limb deficiencies. The group aims to provide understanding and support to parents, carer’s and children by providing opportunities to meet other families through regular meetings and social activities.

Office Phone: 9381 0176
Email: amps@paraquadwa.asn.au
Contact Name: Deena Appleby

Chromosome 18 Registry

A support group for families and individuals affected with Chromosome 18 disorders

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Website:www.chromosome18.org [report broken link]
Email: office@chromsome18.org
Contact Name: Veronika
Contact Mobile: (0)416240066

Civilian Maimed and Limbless Association of WA

To assist persons afflicted with physical disabilities resulting from all types of injury or disease and in particular, those disabilities of a maiming nature or resulting from the loss of limbs.

Postal Address: 10 Selby Street, SHENTON PARK WA, 6008
Office Phone: 9381 0111
Contact Name: Nigel Glass Executive Director John Reeve Administration Officer

CleftPALS WA

Promote welfare of children born with cleft lip and/or palates. Support parents. Visiting new parents in hospital with feeding advice, etc.

Postal Address: 116 Lysander Drive, Heathridge WA, 6027
Contact Name: President: Neeva Stephen

Coeliac Society of Western Australia

Provides gluten free dietary advice and education to coeliac sufferes of dermatitis herpetiformis and others who medically require the diet and their famiies. Phone for meeting details.

Postal Address: PO Box 245, Mt Hawthorn WA, 6915
Office Phone: 9444 9200
Second Office Phone: Freecall 1800 449 200
Fax: 9444 9255
Website:www.wa.coeliac.org.au [report broken link]
Email: coeliacwa@bigpond.com.au

Cornelia De Lange Syndrome Association

Provides support and information to families, carers and medical profesionals involved with sufferers of CDL and raise funds for ongoing research.

Postal Address: c/- 3 Cobalt Place, Riverton WA, 6148
Website:http://cdsla.com.au [report broken link]
Email: ssandilands@primus.com.au
Contact Name: Steve

Cushings Disease Support Group

Provides information to Cushings patients. Provides a phone network to help ease anxiety and distress before, during and after diagnosis and treatment. Endeavours to match similar cases to provide maximum support.

Postal Address: 27 Tamarind Cresecent, Westfield WA, 6111
Office Phone: 9390 2132
Email: jan_ritacca@hotmail.com
Contact Name: Jan

Cystic Fibrosis WA

Provides information on cystic fibrosis in the form of articles, books, newsletters and other material. Also counselling, advocacy, homecare, nursing, physiotherapy, home help.

Postal Address: PO Box 959, Nedlands, 6909
Physical Address: 11 Aberdare Rd (Cnr Hospital Ave), Nedlands, 6009
Office Phone: (08) 9346 7333
Second Office Phone: Freecall: 1800 678 766
Fax: (08) 9346 7344
Website:www.cysticfibrosiswa.org [report broken link]
Email: info@cysticfibrosiswa.org

Dementia Helpline

A 24-hour telephone information and support service available across Australia, staffed by trained and experienced advisers.  Many of the advisers have personal experience in dementia care. All counselling and support services are private and confidential.  Your personal information will not be shared with others without your consent, unless required by law. 

Office Phone: 1800 639 331

Diabetes Australia WA (Inc)

Aims to facilitate better management of insulin dependent diabetes through friendship and support. To provide support and information to parents of children with diabetes. Groups available for Aboriginal, Croatian, Italian, Macedonian and Vietnamese members of the community.

Postal Address: PO Box 6097, East Perth WA, 6892
Office Phone: 9325 7699
Second Office Phone: Freecall 1300 136 588
Fax: 9221 1183
Email: info@dawa.asn.au

Dialysis and Renal Transplant Association of WA (DART)

A renal self hrlp support group providing information to new and long term patients suffering from kidney disease. Also offers social opportunities.

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Contact Name: Sue / David

Down Syndrome Association of WA (Inc)

The Down Syndrome Association of WA (Inc) works to support the community to develop the potential of people with Down syndrome to live a valued life.

Postal Address: PO Box 338, BENTLEY WA, 6982
Physical Address: 4/1136 Albany Highway, Bentley, 6982
Office Phone: (08) 9358 3544
Second Office Phone: Freecall: 1800 623544
Fax: (08) 9358 3533
Website:http://www.dsawa.asn.au/ [report broken link]
Email: dsawa@upnaway.com

Epilepsy Association

Educate those with epilepsy, their family, friends and society, to enable the epilepsy sufferer to integrate successfully in the community and enjoy a full and productive life-style.

Postal Address: Centre for Neurological Support The Niche Suite B 11 Aberdare Road Cnr. Hospital Avenue, Nedlands WA, 6009
Office Phone: 9346 7699
Second Office Phone: 1300 852 853 (Epilepsy Helpline)
Fax: 9346 7696
Website:http://members.westnet.com.au/ict/eawa/ [report broken link]
Email: epilepsy@cnswa.com
Contact Name: President: Mr P. Humphries/Secretary: Sue Davies

Even Keel Bi-polar Disorder Support Association (Inc)

Providing a network of self help groups to those coping with bi-polar disorder/related illnesses. Family, friends and carers are all welcome. Group meetings at Perth, Fremantle, Midland, Joondalup, Rockingham and Yokine.

Postal Address: PO Box 1584, Midland WA, 6936
Office Phone: 9274 2848
Fax: 9250 6437
Email: evenkeel@multiline.com.au

FOCAS (Autism Support)

Focus On Children Within The Autism Spectrum Inc. (FOCAS) is run by parents of children with Autism Spectrum Disorder. These parents have come together to form a non-profit, incorporated association for the purpose of assisting our children to reach their full potential

Postal Address: PO Box 5230, Canning Vale South WA, 6155
Office Phone: Silvana Gaglia 9331 8373      
Second Office Phone: Tanya Robless 94907676
Fax: 94907676
Website:http://members.iinet.net.au/~tangary/ [report broken link]
Email: mailto:focas@iinet.net.au

Fragile X Support Group of WA Inc

Objectives of the Group • To promote knowledge of Fragile X Syndrome within the community • To provide access to, and to distribute, up-to-date information about the Fragile X Syndrome • To provide family contact and encourage social interaction between members and their families • To liaise with, and exchange information with other interested groups • To promote awareness of appropriate educational and social opportunities for individuals with Fragile X Syndrome • To promote and support appropriate planning for the future lives of individuals with Fragile X Syndrome Activities and Services • Member meetings • Parent Link • Support and contact • Information Publications/Resources Several excellent books lodged with Activ library, Jolimont. Available to all members of the library

Email: hoskens@optusnet.com.au or shazazz2@bigpond.com.au
Contact Name: Azma Hosken or Sharon Sargent

Genetic Services of Western Australia

Genetic counselling deals with the human problems associated with the occurrence of a genetic disorder. Counselling is available from a state wide genetic counselling service centre at King Edward Memorial Hospital for Women. Other genetic counselling services include Princess Margaret Hospital, and the Disability Services Commission. Outreach clinics are held in Albany, Bunbury, Geraldton, Kalgoorlie and Port Hedland and Joondalup. Support is offered for families dealing with abnormalities diagnosed before birth.

Postal Address: C/- Dr J. Goldblatt King Edward Memorial Hospital 374 Bagot Road, Subiaco WA, 6008
Physical Address: KEMH 374 Bagot Road, Subiaco WA, 6008
Office Phone: 9340 1525
Fax: 9340 1678
Email: jack.goldblatt@health.wa.gov.au BronwenM.Williams@health.wa.gov.au Terri.Young@health.wa.gov.au
Contact Name: Head of Department: Dr J. Goldblatt

Genetic Support Council of WA

Genetic Support Council WA is a not-for-profit non-government organisation to promote and develop awareness of genetic conditions within the community; provide information and advocacy to individuals and families; foster research; encourage and support service delivery by genetic support groups.

Postal Address: Level 1 Oasis Lotteries House 37 Hampden Road, Nedlands WA, 6009
Office Phone: 9389 6722
Fax: 9389 9377
Website:http://geneticsupportcouncil.org.au/ [report broken link]
Email: admin@geneticsupportcouncil.org.au
Contact Name: Executive Director: Terry Keating Resource Officer: Kristina Johns

Grow in WA

Referral point fro groups in WA. Groups are for rehabilitation after psychiatric illness and prevention of breakdown for people under stress. Groups deal with depression, anxiety and panic attacks, phobias, lack of self esteem and all life problems.

Postal Address: 1170 Hay Street, West Perth WA, 6005
Office Phone: 9321 7333
Second Office Phone: 9842 5973 (Albany)
Fax: 9321 7499
Website:www.growint.org.au [report broken link]
Email: growwa@bigpond.com.au

Guillian-Barre Syndrome GBS Association of WA

Provides telephone support and information to sufferers of this condition which affects the peripheral nervous system. Condition also known as Landry Syndrome, Spiller Syndrome and Fisher Syndrome

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Website:www.ozemail.com.au/~guillan [report broken link]
Email: guillan@ozemail.com.au
Contact Name: Teri

Haemophilia Foundation Western Australia (Inc)

A self help organisation concerned with supporting people with haemophilia and related blood disorders including Willebrands disease. Meetings held monthly.

Postal Address: City West Lotteries House 2 Delhi Street, West Perth WA, 6005
Physical Address: 2 Delhi Street, West Perth, 6005
Office Phone: 9420 7294
Fax: 9486 8966
Email: hfwa@iinet.net.au

Headwest (Head Injury Association of WA Inc)

The purpose of Headwest (Head Injured Society of WA Inc) is to work towards an improved quality of life for people with an acquired brain injury. Through advocacy, referral, information and community education, to promote a greater community awareness of the impact of acquired brain injury on individuals, families, carers and friends throughout Western Australia. Headwest is guided in this by the belief that people with an acquired brain injury should be treated with dignity and respect. They should be supported to achieve the greatest degree of independence possible, in their participation in the range of activities and opportunities available to the community of which they are a part.

Postal Address: PO Box 298, APPLECROSS, 6953
Physical Address: 645 Canning Highway, ALFRED COVE, 6154
Office Phone: (08) 9330 6370
Second Office Phone: Office Phone (2)
Fax: (08) 9317 2264
Website:http://www.headwest.asn.au/ [report broken link]
Email: info@headwest.asn.au
Contact Name: Christina Powell

HeartKids WA Inc

A family support group for children with heart conditions

Postal Address: PO Box 1554, West Perth WA, 6872
Office Phone: 9388 9238
Fax: 9388 9239
Email: heartkid@iinet.net.au
Contact Name: Fran

Imperforated Anus and Rectal Atresia Carers Support Group (Inc) IMPRA

A support group for carers of children who are incontinent as a result of a birth defect or surgical intervention or born with an incomplete anus, bowel and/or incomplete muscle formation.

Postal Address: 151 Keightly Road, Shenton Park WA, 6008
Fax: 9381 8404
Contact Name: Shirley/Sue

Independent Living Centre of Western Australia (Inc)

A professional information, advisory, assessment and training service on equipment and services for people with disabilities and people who are ageing.

Postal Address: The Niche Suite A 11 Aberdare Rd, Nedlands WA, 6009
Office Phone: 9381 0600
Second Office Phone: Freecall 1800 800253
Fax: 9381 0611
Website:www.ilc.com.au [report broken link]
Email: enquiries@ilc.com.au

ISADD (Intervention Services for Autism and Developmental Delay)

ISADD provides services to people with autistic spectrum and other developmental disorders. ISADD currently provides services to a large number of families in the Perth metropolitan area and offers some country, interstate and overseas services.

Postal Address: 2 Butcher Road, Roleystone WA, 6111
Office Phone: 9397 5970
Fax: 9397 6258
Website:www.isadd.org [report broken link]
Email: jtender@ca..com.au

Jenny Roberts Therapist

Provides a home visiting service for families with babies and very young children. For those families that live a distance from the consulting rooms other arrangements can be made. Works with families and not just the child at risk it is described as a very holistic approach that creates results based on a more natural process that touches everyones "heart and soul", instead of the typical clinical intervention used today.

Postal Address: Postal Street Address, Busselton WA, Postal Postcode
Physical Address: Street Address, Bussleton WA, Postcode
Office Phone: (08) 9753 1060
Second Office Phone: Office Phone (2)
Fax: Fax
Website:www.parentswantinghelp.com [report broken link]
Email: Email
Contact Name: Jenny Roberts Therapist
Contact Mobile: Contact Mobile

Kids Are Kids

Kids Are Kids! was developed to offer families a holistic service as an alternative to government therapy services. Following our official opening in 1997, Kids Are Kids! has grown steadily and now provides a wide range of services and sponsored programs.

Postal Address: PO Box 1096, Booragoon, 6954
Physical Address: 26 Parry Avenue, Bateman, 6150
Office Phone: 9313 6566
Second Office Phone: Office Phone (2)
Fax: 9313 5566
Website:www.kidsarekids.org.au [report broken link]
Email: info@kidsarekids.org.au

Kids Cancer Support Group (Perth) Inc

Provides support to parents and sufferers. Improve the quality of life for sufferers and families in the hospital ward. Liaises with hospitals, members of the oncology team and other professionals. Meetings held monthly on the first Tuesday from 7.30pm in ward 3B Princess Margaret Hospital

Postal Address: PO Box 651, Subiaco WA, 6904
Email: azzab@arach.net.au
Contact Name: Sue

KIDS’ CAMPS Inc.

Camps for students with an Intellectual Disability, seeks to provide fun-filled, affordable camps for children with intellectual disabilities and respite for their families.

Physical Address: City West Lotteries House 2 Delhi Street, WEST PERTH, 6005
Office Phone: 9420 7247
Fax: 9420 7248
Website:www.kidscamps.org.au [report broken link]
Email: coord@kidscamps.org.au or admin@kidscamps.org.au
Contact Name: Sian Lambert (Co-ordinator) or June Foote (Office Administrator)

Klinefelters Support Group

A support group for parents of boys with this syndrome and support for teenagers and adults seeking information

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Email: denisashe@bigpond.com.au
Contact Name: Kerry

Learning and Attentional Disorders Society of Western Australia Inc

LADS is a support, information and advocacy agency for people with ADHD and associated conditions. LADS supports children and adults with ADHD and their families. LADS also supports those who treat, teach and work with people who have ADHD.

Postal Address: Postal Street Address, Postal Suburb, Postal Postcode
Physical Address: The Niche, Suite B Cnr Aberdare Road and Hospital Avenue, Nedlands, 6009
Office Phone: (08) 9346-7544
Second Office Phone: Office Phone (2)
Fax: (08) 9346-7545
Website:www.ladswa.com.au [report broken link]
Email: lads@cnswa.com
Contact Name: Contact Name
Contact Mobile: Contact Mobile

Lupus Group of WA (Inc)

Provides support to patients and families and offersup to date information on Lupus. Encourages research and education to all areas of the community. Monthly support group meetings.

Postal Address: c/- Royal Perth Hospital GPO Box X2213, Perth WA, 6847
Office Phone: 9224 3144
Fax: 9224 3144
Website:www.lupuswa.com.au [report broken link]
Email: lupus@wanet.com.au

Marfan Association Australia Ltd WA Branch

Promotes awareness of the syndrome through education and social contact.

Postal Address: PO Box 632, West Perth WA, 6872
Fax: 9342 4286
Email: marfan_australia@hotmail.com
Contact Name: Frank

Meningitis Centre, The

Offers support to meningitis sufferers and their families. Also provides information on meningitis to parents, interested community members and health professionals

Postal Address: PO Box 855, West Perth WA, 6872
Office Phone: 9489 7791
Second Office Phone: Freecall 1800 250 223
Fax: 9489 7705
Website:www.meningitis.com.au [report broken link]
Email: meningitis@meningitis.com.au

Mental Health Information Service

A telephone information service providing mentasl health information and referral. This service will be available to people living in and working for rural and remote parts of Australia.

Postal Address: 62 Gladesville Road, Gladesville NSW, 2111
Office Phone: (02) 9816 5688
Second Office Phone: Freecall 1800 674 200
Fax: (02) 9816 4056
Website:www.mentalhealth.asn.au [report broken link]
Email: info@mentalhealth.asn.au

Motor Neurone Disease Association of WA Inc 

To promote the welfare and improve the quality of life for people with MND and their carers/families. Provides information and education to professionals and lay persons about MND throughout the state.

Postal Address: Centre for Neurological Support - The Niche Suite B 11 Aberdare Rd, Nedlands WA, 6009
Office Phone: 9346 7355
Fax: 9346 7332
Website:http://mndawa.iinet.net.au [report broken link]
Email: mndawa@cnswa.com

Multiple Sclerosis Society of WA

Provides information, support and services for people with MS their families and carers living in WA

Postal Address: Locked Bag 2 Bentley Delivery Centre, BENTLEY WA, Postal Postcode
Physical Address: Parkhill Way, Wilson, 6107
Office Phone: (08) 9365 4888
Fax: (08) 9451 4453
Website:www.multiple-wa.asn.au [report broken link]
Email: multiple@multiple-wa.asn.au

Muscular Dystrophy Association

Research relating to muscular dystrophy and allied neuromuscular disorders; limited welfare facilities for patients. Sponsor for Australia's first Neuromuscular Research Centre.

Postal Address: PO Box 328, West Perth WA, 6872
Physical Address: A Block QE2 Medical Centre Verdun Street, Nedlands WA, 6009
Office Phone: 9382 2700
Second Office Phone: Free Call: 1800 654 632
Fax: 9346 3487
Website:www.mdawa.asn.au [report broken link]
Email: mda@cyllene.uwa.edu.au
Contact Name: Ms Margaret Taylor

Neurofibromatosis Association of WA (NFAWA)

To support sufferers and carers of NF by bringing individuals and their families together. To promote awareness of the condition in the various health professions.

Postal Address: Centre for Neurological Support - The Niche Suite B 11 Aberdare Rd, Nedlands WA, 6009
Office Phone: 9346 7488
Second Office Phone: 9346 7533
Fax: 9346 7534
Website:www.cnswa.com [report broken link]
Email: ncwa@cnswa.com

Noah's Ark Toy Library

Assistance in promoting a child's physical and intellectual development is provided through the advice of trained staff, a wide range of toys, many specially-designed for the Library, educational aids, and resource material. The service is available to children with special needs throughout Western Australia. Library staff members are trained to advise on the selection and use of specialised equipment and assist therapists, teachers and carers in their choice of appropriate resources to support therapy or educational programmes. Schools, Pre-primaries and Child Care Centres, which include children with special needs are also entitled to use the service.

Postal Address: Postal Street Address, Postal Suburb, Postal Postcode
Physical Address: 73 Angove Street, North Perth, 6006
Office Phone: (08) 9328-1598
Fax: 08) 9227-1107
Website:www.natl.org.au [report broken link]
Email: enquiries@natl.org.au
Contact Mobile: 0427 858 170

Paraplegic Quadriplegic Association

Residential facilities for Quadriplegic Centre (spinal/paralysed persons). Recreation centre. Recreation, Para-Quad industries (employment training for disabled). Home Visiting Nursing Service.

Postal Address: PO Box 257, Subiaco WA, 6904
Physical Address: 10 Selby Street, Shenton Park WA, 6008
Office Phone: 9381 0111
Fax: 9382 3687
Website:www.paraquadwa.asn.au [report broken link]
Email: pqa@paraquadwa.asn.au
Contact Name: Executive Director: Mr P. Nigel Glass

Parents Learning and Educational Development Group (PLEDG)

The project is a group of concerned families whose lives are affected in one way or another by the delayed development of a child. The services are individualised to the family needs, based on development and facilitated by educational consultants.

Postal Address: 8/8 George Street, Bunbury WA, 6230
Physical Address: 8/8 George Street 6230, Bunbury WA, 6230
Office Phone: 9791 3455
Fax: 9721 6966
Email: pledgdw@gateway.net.au wills3@bigpond.com
Contact Name: Projects Co-ordinator: Mr Darrell Wills President: Mrs Gail Player

Parkinson's Western Australia

Parkinson's Western Australia is a non-profit, largely voluntary organisation whic assists people with the condition, their carers and families. Parkinson's Western Australia promotes community awareness and provides education assistance to health professionals. Services provided include: Information and referral to resources, nurse specialist, freecall number for country members, a network of support groups for those with Parkinson's and their partners/carers, a bi-monthly newsletter and a quarterly national magazine. A library and resource centre containing written and taped information answering the most commonly asked questions and explaining how to cope with the condition. Seminars, social, recreational and fund-raising events. Funding for and cooperation in local Parkinson's research.

Postal Address: Centre for Neurological Support - The Niche Suite B, 11 Aberdare Road, Nedlands, 6009
Physical Address: Corner of Hospital Avenue and Aberdare Road, Nedlands, 6009
Office Phone: (08) 9346 7373
Fax: (08) 9346 7374
Website:www.parkinsonswa.org.au [report broken link]
Email: pawa@cnswa.com

Parkinson's Western Australia

Add your Description text here.

Postal Address: Centre for Neurological Support - The Niche, Postal Suburb, Postal Postcode
Physical Address: Street Address, Suburb, Postcode
Office Phone: Office Phone (1)
Second Office Phone: Office Phone (2)
Fax: Fax
Website:Website [report broken link]
Email: Email
Contact Name: Contact Name
Contact Mobile: Contact Mobile

People1st Programme

The People 1st Programme provides human relationships, protective, human relationship and self-esteem education for people of all ages with an intellectual, developmental or learning disability; parents and carers; professionals and service providers, and the general community.

Postal Address: 70 Roe Street, Northbridge WA, 6003
Physical Address: 70 Roe Street, Northbridge WA, 6003
Office Phone: 9227 6414
Fax: 9227 6871
Website:www.people1stprogramme.com.au [report broken link]
Email: pip@fpwa-health.org.au
Contact Name: Manager: Ruth Keszia Whiteside

Perthes Disease Support 

Offers telephone support to parents of children with Perthes disease.

Postal Address: 41 Hamelin Drive, Ballajura WA, 6066
Email: gsmills@iinet.net.au
Contact Name: Sandy

Prader-Willi Syndrome Association of WA

To help PWS families and persons by advising them of professional, medical services and other Services relating to Prader Willi Syndrome

Postal Address: 5A Randell Street, Mandurah WA, 6210
Contact Name: Mrs Elenor Smell

Rett Syndrome Association of WA (Inc

Provides support and information to families/carers/professionals and promotes community education.

Postal Address: 26 Cardiff Gate, Iluka, 6028
Email: sanafay@hotmail.com
Contact Name: Sana-a/Gaye

SANE (Australia)

SANE Australia is a charity helping people affected by mental illness. It runs Australia's only FREE national mental illness Helpline and other programs. Call SANE Helpline for information and referral Monday to Friday 9:00am to 5:00pm EST or visit Helpline Online.

Postal Address: PO Box 226, South Melbourne Vic, 3205
Office Phone: (03) 9682 5933
Second Office Phone: 1800 688 382
Fax: (03) 9682 5944
Website:www.sane.org [report broken link]
Email: info@sane.org

SECCA (Sexuality Education Counselling and Consultancy Agency)

SECCA exists to support people who have disabilities to learn about human relationships, sexuality and sexual health across the lifespan and make informed choices, acknowledging individual capacities, to enhance the quality of their lives.

Postal Address: 2 Delhi Street, West Perth WA, 6005
Office Phone: 9420 7226
Fax: 9420 7229
Website:http://secca.org.au/ [report broken link]
Email: admin@secca.org.au
Contact Name: Manager: Suzanne Paust Administration: Maria Barnett

Second Steps Inc

Provides a network of support, awareness and resources to families with a child diagnosed with autism, aspergers or associated development disorders in the South West of WA

Postal Address: c/- WISH PO Box 8140, Perth Business Centre WA, 6849
Office Phone: Carol 9724 1235
Second Office Phone: Jody 9791 3281

Senses Foundation

The Senses Foundation is the main service provider for Western Australians who are deafblind and people who are vision impaired with an additional disability.

Postal Address: PO Box 143, Burswood, 6100
Physical Address: Street Address, Suburb, Postcode
Office Phone: (08) 9473 5400
Second Office Phone: Office Phone (2)
Fax: (08) 9473 5499
Website:http://www.senses.asn.au/ [report broken link]
Email: admin@senses.asn.au

Short Statured People of Australia. WA Branch

The Short Statured People of Australia is a non profit, self help organisation for people who don't (or won't) reach a height of 150 cms at maturity.

Postal Address: 53 Tottenham Street, Chidlow WA, 6556
Physical Address: 53 Tottenham Street, Chidlow WA, 6556
Office Phone: 9572 3049
Contact Name: Secretary: Ms Eleanor Rudwick

Siblings Australia Inc.

Add your Description text here.

Postal Address: Postal Street Address, Postal Suburb, Postal Postcode
Physical Address: Norwich Centre Level 1/77 King William Road, North Adelaide, 5006
Office Phone: 08 8361 8361
Second Office Phone: Office Phone (2)
Fax: 08 8361 8361
Website:www.siblingsaustralia.org.au [report broken link]
Email: info@siblingsaustralia.org.au
Contact Name: Contact Name
Contact Mobile: Contact Mobile

Spina Bifida Association

Support group for parents of children with spina bifida and hydrocephalus. Disposable incontinent aids available to all children with incontinence aged between 3-16 years.

Postal Address: Centre for Neurological Support The Niche Suite B 11 Aberdare Road Cnr. Hospital Avenue, Nedlands WA, 6009
Office Phone: 9346 7520
Fax: 9346 7519
Website:www.sbawa.asn.au [report broken link]
Email: info@sbawa.asn.au
Contact Name: Administrator: Kathy McDermott

State Child Development Centre

The State Child Development Centre is an assessment and follow up centre for children with developmental disabilities. A multidisciplinary team is involved in the assessment and management of physical, social, emotional and intellectual problems.

Postal Address: PO Box 510, West Perth WA, 6872
Office Phone: 9481 2203
Second Office Phone: TTY 9481 0296
Fax: 9324 2085
Email: pauline.ballantine@health.wa.gov.au

Support Organisation for Trisomy and related disorders (SOFT WA)

Supports families dealing with children with Trisomy to help the understand more about the disorder and to link them up with other families.

Postal Address: 16 Ricketts Way, Rockingham WA, 6168
Website:http://www.multiline.com.au/~softwa/softwa.htm [report broken link]
Email: softwa@multiline.com.au
Contact Name: Mandy Chandler (Co-ordinator)

Tackers Foundation WA (children with all types of transplants)

Provides support services to all children suffering from illness where the cure is a new heart, liver, kidney or lung transplant and to suppport the children after the have had their transplant operation. In addition we aim to support the sibling and families of these children who face many issues of their own. Aim to create awareness in the community of the need for organ donation. There are many people on transplant waiting lists and many lives can be saved through greater awareness.

Physical Address: 24 Otisco Crescent, Joondalup WA, 6027
Email: anneandjohnb@smartchat.net.au
Contact Name: Anne/Debbie

Technical Aid to the Disabled Western Australia (TADWA)

TADWA is a voluntary, non-profit organisation that provides technical aids to people with disabilities, the frail aged & carers through the application of technology & the skills of volunteers. Costs are kept to a minimum.

Postal Address: PO Box 266, Bassendean WA, 6054
Physical Address: 60 Lord Street, Eden Hill WA, 6054
Office Phone: 9379 3733
Fax: 9279 5111
Email: technicalaidwa@westnet.com.au

Telethon Speech & Hearing

Provides an independent centre for hearing and speech impaired children. Services start at the of time of diagnosis of a hearing loss or deafness, and are available through to post secondary education.

Postal Address: PO Box 186, Wembley WA, 6913
Office Phone: 9387 9888
Fax: 9387 9889
Website:www.tsh.org.au [report broken link]
Email: speech@tsh.org.au

The Australasian CHARGE Association

Families of newly diagnosed children with CHARGE are provided with an information package on request, and parent and professional representatives are available to discuss CHARGE with any interested persons. Interested medical and educational professionals have involved themselves in gaining data about children in Australia and New Zealand. They also keep abreast with current developments locally and internationally. A newsletter is produced quarterly, fundraising activities occur and planning for future needs of these children and young adults is a major consideration.

Website:www.austcharge.com.au/ [report broken link]
Email: tonyandlisa99@hotmail.com
Contact Name: Lisa Watson

The Australian Arthrogryposis Support Group (TAAG) Inc

The Australian Arthrogryposis Group (TAAG) Inc was started in 1990 by a group of parents who have children with arthrogryposis. The birth of a child with a disability can be a devastating experience for the family involved and the rarity of this condition may make the family feel extremely isolated. Although each child may have different manifestations of arthrogryposis, just meeting another family with an affected child may be a tremendous relief.

Email: berriga@telstra.com
Contact Name: Jacqueline Brand (Secretary)

The Neurological Council of WA (Inc)

To promote the common aims of the member organisations which are to alleviate sickness, suffering and distress occasioned through neurological diseases, to provide support for persons suffering from, those diseases and their families, and to advance research and other work towards developing and applying methods to prevent, control and cure such diseases.

Postal Address: Centre for Neurological Support The Niche Suite B 11 Aberdare Road Cnr. Hospital Avenue, Nedlands WA, 6009
Physical Address: Centre for Neurological Support The Niche Suite B 11 Aberdare Road Cnr. Hospital Avenue, Nedlands WA, 6009
Office Phone: 9346 7533
Second Office Phone: Free Call: 1800 645 771
Fax: 9346 7534
Website:http://www.cnswa.com/ [report broken link]
Email: ncwa@cnswa.com
Contact Name: Officer Administrator: Linda Freedman

Therapy Focus Inc

Therapy Focus Inc is a community service organisation that delivers therapy and professional services in the home, school and community. Therapy Focus' services include Therapy, training, products, expert opinion, professional consultancy and organisational consultancy.

Postal Address: Level 2, 161 Gt Eastern Hwy, Belmont, 6104
Physical Address: Street Address, Suburb, Postcode
Office Phone: 9478 9500
Second Office Phone: Office Phone (2)
Fax: 9277 9555
Website:http://www.therapyfocus.org.au [report broken link]
Email: enquiries@therapyfocus.org.au
Contact Name: Contact Name
Contact Mobile: Contact Mobile

Vizhelp

To help provide information to the parents of the blind or vision impaired. The information may relate to social, sporting, educational or recreational issues. To keep everyone aware of the advances in technology used in education by children and adults who are blind and vision impaired. To provide advice to the financially disadvantaged about the purchase of adaptive technology and equipment. To promote the 'Heart of Gold Award', an annual monetary award to assist families with children who are blind and vision impaired. To advocate on behalf of families of the blind and vision impaired.

Postal Address: PO Box 101, Victoria Park WA, 6979
Office Phone: 9311 8202
Second Office Phone: Free Call: 1800 658 388
Fax: 9361 8696
Website:http://www.vizhelp.org/ [report broken link]
Email: penny@vizhelp.org
Contact Name: Convenor Vizhelp Marie Czatyrko

WA Retinitis Pigmentosa Foundation



Postal Address: Suite 2, 251-255 Stirling Street, Postal Suburb, PERTH
Office Phone: (08) 9227-7585
Website:http://www.retinitispigmentosa.com.au [report broken link]
Email: warpf@wantree.com.au
Contact Name: Vivienne French
Contact Mobile: Contact Mobile

WA Stroke Foundation Inc.

The Foundation exists to significantly reduce the incidence and severity of stroke and improve the quality of life of stroke survivors through promotion, education and research. Provides members with the opportunity to share their thoughts, feelings and problems with other stroke survivors and their families as well as to provide information and continuing education to its members on various aspects of stroke.

Physical Address: The Niche Suite B 11 Aberdare Road, Nedlands, 6009
Office Phone: (08) 9346-7540
Fax: (08) 9346-7534
Website:www.strokewa.info [report broken link]
Email: stroke@cnswa.com
Contact Name: Tom Benson, State Coordinator

Western Australia Ostomy Association (Inc)

Distribute medical goods including stoma supplies to those who have a colostomy, ileostomy or urostomy. Advice and assistance. Nursing sister ( Stomal therapist) available in all major hospitals and Silver Chain. Equipment for bowel and bladder waste.

Postal Address: 15 Guildford Road, Mt Lawley WA, 6050
Physical Address: 15 Guildford Road, Mt Lawley WA, 6050
Office Phone: 9272 1833
Fax: 9271 4605
Email: waostomy@waostomy.asn.au

Western Australian Aids Council (WAAC)

Provides educational, support, counselling and advocacy to persons infected or affected by HIV/AIDS.

Postal Address: PO Box 1510, West Perth WA, 6872
Office Phone: 9482 0000
Second Office Phone: AIDS Information Line 9429 9944
Fax: 9482 0001
Website:www.waaids.com [report broken link]
Email: waac@waaids.com

Western Australian Deaf Society (Inc), The

To empower deaf people in Western Australia to achieve equality of opportunities and independence in all aspects of life.

Postal Address: PO Box 8558, Perth BC WA, 6849
Physical Address: 46/5 Aberdeen St, East Perth WA, 6004
Office Phone: 9441 2677
Second Office Phone: TTY 9441 2655
Fax: 9441 2616
Website:www.wadeaf.org.au [report broken link]
Email: wadeaf@wadeaf.org.au

Williams Syndrome Family Support Group of WA Inc

Provides support, friendship and information for families and people diagnosed with this rare genetic condition which causes medical and developmental problems

Postal Address: 6 Teak Way, Maddington, 6109
Physical Address: Street Address, Suburb, Postcode
Office Phone: 9459 3716
Second Office Phone: Office Phone (2)
Fax: Fax
Website:Website [report broken link]
Email: wsfsgwa@tpgi.com
Contact Name: Rob
Contact Mobile: Contact Mobile
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